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Veterans With ALS

This page offers important information and forms that will help Veterans with ALS apply for veteran's benefits, compensation and medical care.

Please click on the bold text links to access forms and/or additional information.

Interim final rule to allow SAH benefits for Vets with ALS – should make it easier and faster for vets to get this benefit. 

Below is a copy of the internal email sent to all of policy staff:

Good Morning:

Per the request of the Chief of Regulation Staff, attached in the below hyperlink is VA interim final rule, RIN 2900-AO84, Specially Adapted Housing Eligibility for Amyotrophic Lateral Sclerosis Beneficiaries.

AO84 was published in the Federal Register today, December 3, 2013.
In an effort to recognize the rapidly progressive, totally debilitating, and irreversible nature of amyotrophic lateral sclerosis (ALS), the Department of Veterans Affairs (VA) is amending its adjudication regulation regarding specially adapted housing (SAH) by issuance of an interim final rule.  Previously and generally for the same reasons, VA amended 38 CFR 4.124a, diagnostic code 8017, to provide for a 100-percent disability evaluation for any veteran who has service-connected ALS.  Amending 38 CFR 3.809, this rulemaking, which is applicable to SAH claims pending or filed on or after the Federal Register publication date, streamlines one aspect of the adjudication process within VA’s control regarding SAH, by establishing SAH eligibility for all veterans or service-members with service-connected, totally disabling ALS.  By shortening the first stage of the SAH process, this regulatory change will assist veterans and service-members suffering from ALS in adapting their homes before their condition becomes too debilitating.  It will also lengthen the period during which ALS-afflicted veterans and service-members will be able to utilize the core SAH benefits.

This interim final rule is found in the hyperlink below.

Important Information To Read First

New Veterans Administration Policy for ALS  

ALS in the Military White Paper  

Please refer to the list of NYS representatives who can help you apply for benefits. Contact your NYS Representative or Veterans Benefit Representative at your local VA to help you with the forms.  Keep copies of all forms. 
Enrolling for clinical care in your local Veterans hospital or Community Based Outpatient Clinic will be important to help you obtain clinical care, medications/supplies and needed equipment.  Call your local VA for further information. For information and help finding your local VA please go to the Veterans Affairs location page

VA Final Rule, RIN 2900-AN60 Evaluation of Amyotrophic Lateral Sclerosis (ALS)

Published December 20, 2011: This rulemaking adopts as a final rule, without change, the proposed rule published at
75 FR 35711 on June 23, 2010.  The final rule modifies diagnostic code 8017 in 38 CFR 4.124(a), the schedule of ratings for neurological conditions and convulsive disorders, by increasing the minimum evaluation for ALS from 30 percent to 100 percent.  Providing a 100-percent evaluation in all cases obviates the need to reassess and reevaluate veterans with ALS repeatedly over a short period of time. This final rule applies to an application for benefits that:

  • Is received by VA on or after January 19, 2012;
  • Was received by VA before January 19, 2012 but has not been decided by a VA regional office as of that date;
  • Is appealed to the Board of Veterans' Appeals on or after January 19, 2012;
  • Was appealed to the Board before January 19, 2012 but has not been decided by the Board as of that date; or 
  • Is pending before VA on or after January 19, 2012 because the Court of Appeals for Veterans Claims vacated a Board decision on the application and remanded it for readjudication. 

What Forms Do I Need For Medical Benefits?

A VA form 10-10EZ "Application for Medical Benefits" is used to request enrollment in the VA Health Care System (Apply for Medical Benefits). Typically, Veterans who have NOT previously enrolled or applied for VA health care benefits should use this form.
VA Form 10-10EZR, Health Benefits Renewal Form If you were previously enrolled in the VA Health Care System, and want to re-enroll, or update/change your information, use this form. 

Every Veteran needs to have their DD214- Discharge Papers from the Military.  You can obtain your discharge papers via the Veterans Administration online or by mail or fax.

Form 21-526 - Application for Compensation - Any Veteran who has had 90 days of continuous Active Duty and who develops ALS at any time is eligible for Compensation benefits.

Form 21-22 - Appointment  of a Veterans Service Organization as Claimant's Representative - Allows a service organization to act as representative to prepare and present claim for any and all benefits from the Department of Veterans Affairs.

Form 21-22A - Appointment of Individual as Claimants Representative - Gives permission to appoint an individual as representative to prepare, present and prosecute claims for any and all benefits from the Department of Veterans Affairs.

Form 21-2680 - Examination for Housebound Status or Permanent Need For Regular Aide and Attendance  - This form is filled out by person with ALS's physician. This form is needed when person becomes housebound. 

Form 180 - Request Pertaining to Military Records (SF180) is Used To Request Information From Military Records - Certain identifying information is necessary to determine the location of an individual's record of military service. Please try to answer each item on the SF 180.

Grants and Special Allowances

Specially adapted housing grant (SAH) - Veterans who have specific service-connected disabilities may be entitled to a grant for the purpose of constructing an adapted home or modifying an existing home to meet their adaptive needs. The goal of the Specially Adapted Housing (SAH) Grant Program is to provide a barrier-free living environment which affords the veteran a level of independent living that he or she may not have otherwise enjoyed. The SAH grant is generally used to create a wheelchair accessible home. This grant is currently limited to $50,000.

Automobile and Special Adaptive Equipment Grants - Financial assistance, in the form of a grant, is available to purchase a new or used automobile (or other conveyance) to accommodate a veteran or service member with certain disabilities that resulted from an injury or disease incurred or aggravated during active military service. The grant may also be paid, if disabilities are a result of medical treatment, examination, vocational rehabilitation, or compensated work therapy provided by the Department of Veterans Affairs (VA). The grant is paid directly to the seller of the automobile for the total price (up to $11,000) of the automobile. The veteran or service member may only receive the automobile grant once in his/her lifetime.

Clothing Allowance - Veterans who have to wear prosthetic or orthopedic devices can testify to the wear and tear these devices inflict on clothing. The constant rubbing can wear out parts of clothes quickly and many veterans cannot afford to go out and buy new clothes to replace worn ones. There are also vets who have skin conditions caused by service related incidents and are required to wear medications and creams which can permanently mar or deteriorate clothing. The U.S. Government offers a yearly clothing allowance of up to $700 for these circumstances. Please see Clothing allowance handbook for additional information. The "prosthetic or orthopedic device" described includes a wheelchair, according to CFR 3.810 for additional information please click here.

Partial Exemption from Property Taxes in New York State - Real Property Tax Law provides a limited exemption from real property taxes. This is for real property owned by persons who rendered military service to the United States, provided such property meets the requirements set forth in the law. Form RP-458-a-Dis and instructions

Survivor's Benefits For Widows of Veterans That Passed From ALS

What Are the Benefits That a Widow/Widower Can Receive?

During an already difficult time for a widow/widower when their spouse passes away  from Amyotrophic Lateral Sclerosis (ALS), there is some comfort to know that there are benefits from the Department of Veteran's Affairs (VA) to assist them. When the primary or contributory reason for death is a service connected disability or disease; the widow/widower may be eligible for the Dependency and Indemnity Compensation or DIC  benefit. The DIC benefit is a monthly monetary award that is paid the first of every month for the previous month of benefit. Currently that amount is $1,154.00; with an additional monetary benefit for dependents and/or the need for aid and attendance. Two other benefits are the burial and plot benefits. The VA currently will pay $2,000.00 to a widow/widower as a burial benefit and $300.00 as a plot allowance benefit.

What Paperwork Is Needed To Submit a Claim For DIC and Burial/Plot Benefits?

A VA form 21-534 "Application for Dependency and Indemnity Compensation, Death Pension and Accrued Benefits by a Surviving Spouse or Child" will need to be completed.  Along with the VA form 21-534; a certified copy of the veteran's DD214 (discharge document), a copy of the death certificate of the veteran stating the primary and contributory reasons for death, and a copy of the marriage certificate will need to be enclosed.

A VA form 21-530 "Application for Burial Benefits" will need to be completed; along with the VA form 21-530; an itemized paid statement/invoice from the funeral home and a statement/invoice for the plot cost will need to be enclosed.

Please click here for important contact information for veterans with ALS. 


St. Peter's Health Care Services makes no representations whatsoever about any other website which you may access through this one. When you access a non-St. Peter's Heath Care Services website, please understand that it is independent from St. Peter's Heath Care Services, and that St. Peter's Heath Care Services has no control over the content on that website. In addition, a link to a non-St. Peter's Heath Care Services website does not mean that St. Peter's Heath Care Services endorses or accepts any responsibility for the content, or the use, of such website. (Read entire disclaimer.)

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